Neurofibromatosis Research.com

Well, it's been one week since I started taking Bio 30 Propolis from Manuka Health and things are going well. As I mentioned before, I'm currently taking approximately 1/2 a bottle a day and it's probably a little more than that.

According to Annette at Manuka Health, the dropper in the bottle is 1ml, but when I squeeze the plunger, it usually doesn't fill up all the way, so I usually do 5 dropper doses each time just to make sure.

Hey Everyone!

James Here. I'm going to be doing a series of posts, images and maybe even videos about a product I'm going to be using to see if it helps with my Neurofibromatosis bumps and tumors . If you've done any research lately for new Neurofibromatosis treatments, chances are you've heard of Bio 30 Propolis from Manuka Health in New Zealand.

I just finished creating a video with details of the new NF Resources section on my site. If you haven't had a chance to check it out, give the video a quick watch and then check out this section. I've put a lot of work into finding some of the better Neurofibromatosis books and articles to create a resource that will save people time and give them one location where they can find all the information they're looking for.

I'm still working on adding to the NF Resources section, so if there's anything you'd like to see listed there, please make suggestions.

I just created a new section on the website called NF Resources and you can find it on the left navigation under Useful Links. In this section, I plan to have helpful resources for people looking for information about Neurofibromatosis.

I just created 2 new polls asking questions about creating and promoting your Neurofibromatosis website. If you already have a website or have thought about creating a website, please take a few moments and answer the polls.

If you choose Polls from the navigation on the left, you'll see a list of available polls and you can click on the one you want to take. I'm going to use the results of these polls to plan future site content and videos. I also have some step by step video tutorials planned.

Thank you

I'm currently working on a video that will show people how they can make a donation to help with Neurofibromatosis research to find treatments and hopefully eventually a cure. It's very simple to make a Neurofibromatosis donation and you can actually make one directly from this website. Simply click on the link on the left that says Our Charity Badge.

I have set a goal and need the help of everyone who reads this post and visits Neurofibromatosis Research .com to make it happen. My goal is to raise $100,000 for the Children's Tumor Foundation through my Neurofibromatosis charity badge by the end of 2009.

You may be wondering why I'm pushing this issue so much, but I'm wondering why people don't seem go get it. The point of having your own website is to raise awareness.

Hanging out on message boards on other sites is great, a lot of people draw comfort from each other, but in my opinion, it's just a place for people to come together and talk about how miserable NF makes them and it doesn't help to raise awareness. It also doesn't help anyone get closer to an effective treatment for Neurofibromatosis.

Well, it's official, I finally finished working on the video that will hopefully help those with Neurofibromatosis to get their domain names and start building their websites. As you’ll be able to see from watching the video, it isn’t very difficult to do. After you get your domain name, you just need to host it on a web server and start building your website.